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Rubber Room This forum is for crying, whining, bickering, shouting, name calling, complaining, accusing, etc. If you want to do any of the above, do it here.

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Old 10-05-2007, 05:54 PM   #1
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My Positive Huntington's Website

I am 24, am experiencing HD symptoms. My family is one of the few in the world who have early onset. I was a Nurse before I got sick. I made a positive, comprehensive website. It has a blog, care giving tips, ways to fight brain fog, myths, my story, my families’ story, and ways to have a positive testing experience. I also put on there the poems I got published in the horizon.


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Old 10-05-2007, 08:11 PM   #2
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Re: My Positive Huntington's Website

Excellent website. Thank you very much for sharing
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Marie, RN in O.R, pursuing BSN, semester ? of ?

Supposedly 8 out of 10 people suffer from hemorrhoids. Does that mean that the other 2 people enjoy them???

I am convinced that certain college courses were invented to drive me to insanity. Luckily, it would be a short trip.
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Old 10-05-2007, 08:19 PM   #3
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Re: My Positive Huntington's Website

I was always under the impression it was a disease that hit later in life. Never knew about the earlier onset. Reminded me of the 3 'forms' of Tay-Sachs that hits those not of Jewish background.

'Cat'
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Old 10-09-2007, 12:12 AM   #4
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Re: My Positive Huntington's Website

Thank you both too much. I wanted to put up a positive website. I am trying to show that even though we are sick, we can still be happy. We can still have good lives. All we have done is accept it and move on. There also is like Tay-Sachs. The regular older onset Hd is more common. That’s why a lot of people aren’t aware of the different types.
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